MARCH 30, 2007
VOLUME 4 NO. 6

PATIENTS & PRACTICE

Arthritis care sorely inadequate

Guidelines, patient-focused initiatives aim to fill primary gap


Arthritis care 101
What you need to know

Osteoarthritis is the most common type of arthritis. It is caused by cartilage wearing down over time; the loss of cartilage means bones may rub together, causing pain and swelling. Osteoarthritis can be identified by its gradual onset and lasting discomfort. The most useful diagnostic methods are physical examination, getting a patient history about the type and severity of the pain, and examining x-rays to confirm the loss of cartilage.

Rheumatoid arthritis is less common but generally more severe. It is an autoimmune disorder, and can cause swelling of the internal organs as well as of the joints (most commonly the hands and feet). Warning signs include stiffness after waking that lasts for at least 30 minutes, and symmetrical pain (inflammation in the same joints, on both sides of the body). Symptoms can include flu-like presentation, hard nodules near the joints, and general fatigue. A number of blood tests — including rheumatoid factor, white blood cell count, and C-reactive protein — are available to help diagnose rheumatoid arthritis. Treatment is available, but it's important to start early in the course of the disease for best results. If you suspect a patient has RA, refer them to a rheumatologist immediately.

Arthritis is, paradoxically, one of the most common diseases afflicting Canadians but one of the most frequently overlooked in primary care. "It may a bit strong to say [family physicians] don't have enough knowledge," says Dr Jane Aubin, scientific director of the Canadian Institutes of Health Research (CIHR) Institute of Musculoskeletal Health and Arthritis, "but the fact that many people are not being quickly diagnosed says there's a deficiency in physician awareness in diagnosing arthritis."

A lack of time to see patients — the traditional culprit at the heart of many of our healthcare system's troubles — plays a role, she explains, but the underlying problem is FPs' lack of familiarity with evidence-based guidelines for diagnosing and managing the various forms of the common disease.

In response to the shortcomings in arthritis care, two very different approaches for improving the situation have emerged in Canada over the past several years. The first, best practices initiatives, stress the deficiencies in FPs' diagnoses, rates of referral and pain management as established by researchers. On the other hand, patient education initiatives focus instead on providing patients with easy to understand information and guidance on how to determine what treatment and pain management might be most appropriate for them.

Despite their differences, the two approaches may provide a roadmap of sorts to an improved future for arthritis care.

WEAR AND TEAR
"Part of the issue," according to Dr Aubin, "is that many people in the general population and many family physicians still unfortunately think arthritis — or aches and pains in the joints — is a natural consequence of getting older."

It's a common fallacy, says the former scientific research chair and CEO of the Canadian Arthritis Network, and one that FPs must be wary of. "Obviously, wear and tear on the joints occurs, but I wouldn't say arthritis is a natural part of aging," she says. "The issue is whether it's even recognized as something that needs to be treated."

CLINICAL REFORM
The revelation that arthritis has been largely left by the wayside in Canadian primary care was made public thanks in part to the Summit on Standards in Arthritis Prevention and Care, organized by the Alliance for the Canadian Arthritis Program in November 2005.

The most pressing issues for FPs, explained Dr Aubin, are the very basic ones: diagnosis and pain management. Of course, patients often need complex treatments including physical therapy and joint replacement surgery that are beyond the realm of family practice — but none of the care specialists can offer is available to patients who aren't first diagnosed in a timely fashion by their FPs.

And patients rarely see specialists: a 2005 study in Arthritis & Rheumatism by researchers from UBC's Arthritis Research Centre of Canada found use of drug treatment by FPs was "inappropriately low" and proper prescriptions increased 31-fold when patients were under the care of a rheumatologist. Unfortunately, only 34% of patients saw a rheumatologist over a two year period, and just 48% over five years.

PATIENT EDUCATION
Some researchers have focused instead on getting the information directly into patients' hands. Dr Lucie Brosseau, a University of Ottawa rehabilitation epidemiologist, presented her new knowledge-transfer model at the Cochrane Symposium in Ottawa in February.

For her experiment, Dr Brosseau and her colleagues first met with a small group of influential, interested arthritis patients, trained them to teach others about arthritis self-management methods and then sent them out to give workshops in their communities. The results were promising: participants' in the expert-patients' workshops improved their knowledge of a variety of self-management techniques by between 20% and 55% from baseline. "If patients are well trained by health professionals, they can teach other patients self-management in a practical way and get results," says Dr Brosseau.

While some may argue her work conflicts with what clinical reformers like Dr Aubin are trying to accomplish, Dr Brosseau sees patient initiatives as complementary. The majority of evidence-based guidelines for arthritis treatment have not been adopted by FPs, she says. "We know they are widely disseminated, but we don't know if they are using them."

 

 

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